#longcovid Timeline

239d

#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie #mecfs #longcovid #chronicillnessmemes #disability

Me asking: hey, can you help me out with my illness & disability

Health system: "Aww, that's a hard no, babe"

ALT

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33d

It's my birthday today, and I wrote this thing on my blog about how I experienced the last year: https://www.johannesjaeger.eu/blog/living-with-fatigue-and-a-society-that-does-not-care.

I really needed to get this out of my system.
Millions are missing, and nobody seems to care.
#MECFS #MCAS #LongCOVID

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15d

News from #MEAction - planning for #MillionsMissing 2025 (May 12)

"If you are interested in organizing a protest, gathering in a park as a community or making art, please join one of our protest organizing meetings on Thursday, April 10"

Meeting 1: Thursday, 4/10, 12pm PT/3pm ET
https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration

Meeting 2: Thursday, 4/10, 3pm PT/6pm ET
https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration

Details:
https://www.meaction.net/2025/04/02/millionsmissing-2025-sending-out-an-sos/

@mecfs

#MEcfs #PwME #LongCovid #PwLC #MEAwareness #May12 #MyalgicEncephalomyelitis

Join Us for Millions Missing 2025

- (USA) Join the protest at the Capitol in Washington, D.C.
- Host your own #MillionsMissing protest or gathering
- Show up on social media on May 12th
- Get creative—create SOS art with messages directed at your government/elected officials
- Check out UK’s #MillionsMissing campaign—coming soon!

ALT

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4d

I think I've already posted this but it's worth re-posting:

"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"

https://www.salon.com/2025/04/01/admins-on-chronic-disease-research-abandons-long-and-mecfs-patients-again/

"Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS"

@mecfs @longcovid

Edit: added hashtag

#USPol #LongCovid #MEcfs #Research

Dr. W. Ian Lipkin, director of the Center for Infection and Immunity at Columbia University, has spent more than two decades studying a debilitating chronic illness that is often misunderstood and stigmatized, known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Lipkin's work faces an uncertain future after grants from the federal government were terminated last week, stripping patients with this chronic disease of one of the few sources of research endeavoring to understand their condition and find treatments, he said.

The Center for Solutions for ME/CFS is one of a few centers across the country dedicated to studying this condition, but it can no longer remain operational, Lipkin said. It was receiving funding from the National Institutes of Health, but the Trump Administration cut about $250 million in grants to Columbia, which the agency said occurred due to the university's "continued inaction in the face of persistent harassment of Jewish students.”

ALT

Edited 4d ago

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