Many thanks to George Monbiot for remembering people with ME/CFS ❤️
"Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed"
"Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors"
#MEcfs #PwME #MyalgicEncephalomyelitis #LongCovid #ChronicIllness #Healthcare
ICYMI: In less than three weeks I'm running the Amsterdam marathon, to raise funds for the Dutch Long COVID Foundation, to support research into causes and treatment.
Thanks to many of you I'm at 95% of my €2100 target (€50 for each of the 42K). To help me reach the full target and the finish line, please consider making a donation as well! Every amount counts!!
Thank you so much!!
https://supporta.com/htg9/6mynzkh7vh
#longcovid #stichtinglongcovid #cfs #mecfs #mecvs #runnersofmastodon
'This is not about my bicycle, not really. It is about the grief that never ends. I grieve and I grieve and I grieve and I think this illness should be renamed. Nobody told me about the grief.'
TW: grief, bad mental health, anxiety
(I normally write positive or least bittersweet posts. This is not it. I almost didn't share. I often feel obligated to hide the darker parts, like I often downplay symptoms with GPs. I'm trying to change this).
https://dispatchestofriends.mataroa.blog/blog/this-is-not-about-my-bicycle/
I just found out that the electrolyte supplements I rely on every day to remain upright are likely to become unavailable in the near future.
It took me the better part of a year to dial in a mix that gave me back some function. That the whims of capitalism are taking that sucks.
If you're a #pots / #longcovid sufferer who uses such things, I'd welcome suggestions for an alternative.
Double points for not containing sugar, tasting like a (further) punishment, or not costing an arm and a leg.
