阿尔茨海默病是什么？如果有一天家人突然不认识你了，你该如何应对，如何劝慰，如何照料？面对一场注定以“失败”告终的战斗，面对亲人终将失去理智、失去自我的结局，被现实击中的我们，该如何与孤独共存？ 本书讲述了一个关于彼此“照护”的动人故事。凯博文在妻子被诊断出患有早发性阿尔茨海默病后，作为一个丈夫同时也是医生，开始了对她的悉心照护。书中讲述了他在医学领域的人生历程以及他和妻子的点滴故事，从中我们能看到凯博文与妻子之间真挚笃厚的感情，能看到现代医学及医学教育对于“照护”的忽视，能看到“照护”如何为我们每个人的存在找寻到了意义。他以自己的毕生经历强调，“照护”才是医学的核心。 【作者简介】 凯博文是精神病学、人类学、全球卫生以及医学人文领域最著名的学者之一，也是美国国家科学院医学院院士和美国国家文理学院院士。他毕业于斯坦福大学和斯坦福医学院，而后在哈佛大学任教逾四十年，目前是哈佛医学院的精神病学与医学人类学教授，同时也是哈佛大学文理学院的人类学讲席教授。2008年至2016年，他曾担任哈佛亚洲中心主任。著有《疾痛的故事》《道德的重量》《苦痛与疾病的社会根源》等专著。 【编辑推荐】 ★这是一封用十年照护写下的动人情书，一本由精神科医生亲自践行的“科学照护指南”。 ★哈佛大学著名人类学家、医学人类学奠基人凯博文用亲身经历写给每个人的人生必修课——“我的整个职业生涯都在研究疾病和照护，但为了我所爱的人而成为一个真正家庭照护者的实践经验，却是一份难能可贵的礼物。” ★直击医学本质，直面医患矛盾，直达照护核心。 ★著名人类学家、美国加州大学洛杉矶分校中国研究中心主任阎云翔，北京大学哲学系教授吴飞，作序推荐；复旦大学人类学研究所教授潘天舒担当审校；清华大学社会学系教授、公共健康研究中心主任景军，中国科学院院士、北京大学第六医院院长陆林，上海市精神卫生中心院长徐一峰，《查无此人》作者、文学翻译于是，联合推荐。 【媒体评论】 《照护》可以为美国四千万家庭照护者带来指导和安慰。 ——《华盛顿邮报》 凯博文细腻地回忆了他的已故妻子与早发性阿尔茨海默病的故事。在这本回忆录中，他坦诚指出了社会对于为病人提供个性化照护的忽视。 ——《出版人周刊》 这本书让照护的治愈作用变得无与伦比！医疗与照护不是对立的，凯博文教授正努力阐述这一点。拥有一颗关怀的心是如此重要——它的意义甚至超越了医学。 ——《纽约日报》 【国外推荐】 《照护》这本书会让你感到非常震撼，但同时它又会教给你很多东西。在如何用一生来耕耘我们的人性方面，这本书既提出了伦理上的要求，也分享了许多给人以希望的宝贵经验。 ——保罗·法默，哈佛大学全球健康与社会医学系主任 这是一部真正出类拔萃而又美丽动人的著作，它将改变我们思考人生与社会的方式。 ——迈克尔·普鸣，哈佛大学中国史与人类学教授 打开这本书，然后做好被震撼与被启迪的准备。 ——金镛，世界银行前任行长 这是我读过的最感人的书之一，让人难以忘怀……凯博文提醒我们，究竟什么才是工作、生活及死亡中真正重要的东西。 ——霍华德·加德纳，世界著名教育心理学家 凯博文的这本书富于人性关怀，对于我们所有人来说都会是某种启迪。 ——李·古德曼，哥伦比亚大学医学院院长 非常感人……《照护》这本书见证了人们从爱的回忆中汲取养分的能力，即便那些回忆正从所爱之人那里渐渐消失。这是一部非常重要的书。 ——凯•雷德菲尔德•杰米森，《躁郁之心》作者 这是一个爱情故事，也是一篇道德论文，同时也批判了现代机构及关系中照护精神的缺失。 ——塔米娜·阿那姆，《优雅之骨》作者 这部感人至深的著作提出了一个叫人信服的论断，即照护不应被当作某种不幸的义务，而应被当作某种道德层面的实践。 ——安妮·法迪曼，作家 【国内推荐】 本书要义已远超个人经验，直达医疗本质。我们是谁，何以为人，医学理性与人性，病患的苦难，怜悯与希望，相助，有尊严的离世……凯博文作为丈夫同时又是医者的感悟由十年之久的躬身照护历程生发开来。每个人，无论是否是医疗从业人员，作为照护者或终将成为的被照护者，都需要补上这一课。 ——徐一峰，上海市精神卫生中心院长 优雅地变老和离去，是我们每个人最后的尊严。每个人在离开世界前能得到精心的照护，是我们现代社会和文明努力的方向。 ——陆林，中国科学院院士、北京大学第六医院院长 凯博文教授是我博士论文指导老师之一，他在近八十岁之际撰写此书的动力，是要探讨“照料之魂”。通观全书，魂之意涵，在于两点，一是形形色色的护理者对患者发自心底的精心照护，二是患者从各式各样的护理者得到的无比之爱。两者之并联是现代医学一直难以面对的重症病人的精神慰藉问题。 ——景军，清华大学社会学系教授 哈佛大师阿瑟•克莱曼一生著述很多，这本书或许是他的封笔之作，他的一生在医学心理学、社会学、人类学等方面有很高的理论建树，这本书却是晚年陪伴失智妻子的体验书写，由此构成他阅历的极致，生命理解的巅峰。从个体疾苦到人类疾苦，从亲人照护到社会照护，阿瑟•克莱曼的书开启了全新的生命之门。 ——王一方，北京大学医学人文学院教授 凯博文建立了科学和生老病死之间的感性纽带，提议把叙事纳入医学领域，强调了疾痛那无形的存在，也赞赏了中国式养生养老的传统。最基本的照护体验往往能带来最深刻的人性教养。包括阿尔兹海默症在内的各种重疾最终考验的是家庭关系，而不仅仅是医患关系。这本书也是一位学者在多年实践中的思想史，他告诉我们：从照护出发，可以最终抵达博大深远的人类文明核心。 ——于是，翻译、《查无此人》作者 这本书向读者展示了一名医生在照护患有阿尔茨海默病妻子时的心路历程，作者以医生和患者家属的双重身份，以独特的视角在书中探讨了对认知障碍和精神类疾病的照护伦理，一定程度上也为阿尔茨海默病患者及其家属提供了照护指导。 ——贾龙飞，宣武医院神经内科副主任医师

The SARS epidemic of 2003 was one of the most serious public health crises of our times. The event, which lasted only a few months, is best seen as a warning shot, a wake-up call for public health professionals, security officials, economic planners, and policy makers everywhere. SARS (Severe Acute Respiratory Syndrome) is one of the “new” epidemics. SARS in China addresses the structure and impact of the epidemic and its short and medium range implications for an interconnected, globalized world. After initially stalling and prevaricating, the Chinese government managed to control SARS before it became a global catastrophe, an accomplishment that required political will and national mobilization. Recent warnings from the World Health Organization (WHO) and the Centers for Disease Control and Prevention (CDC) regarding avian flu make it clear that SARS may have been a prelude to bigger things. The contributors to this volume include a journalist, WHO’s representative in Beijing, and health care professionals, several of whom found themselves on the frontlines of the battle to understand and control SARS. Their vivid, first-hand accounts encouraged other contributors to go beyond the boundaries of their respective disciplines and write for a wide audience. The authors of this volume focus on specific aspects of the SARS outbreak—epidemiological, political, economic, social, cultural, and moral. They analyze SARS as a form of social suffering and raise questions about the relevance of national sovereignty in the face of such global threats. Taken together, these essays demonstrate that SARS had the potential of becoming a major turning point in human history. This book thus poses a question of the greatest possible significance: Can we learn from SARS before the next pandemic?

A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today’s world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer’s disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work–at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be “present” for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human. “This is the story that may offer instruction and comfort to the 40 million family caregivers in the United States, and inspiration to clinicians struggling to go beyond diagnosis and treatment—to provide care.” —The Washington Post “The Soul of Care is important. Its significance goes beyond medicine.” —New York Journal of Books “Kleinman sensitively weaves the story of his late wife Joan’s early-onset Alzheimer’s disease with frank commentary on the decay of personalized patient care in this clear-eyed memoir…. Kleinman’s accessible discussion of patient care should appeal to a broad range of readers.” —Publishers Weekly (starred review) “[Kleinman] reminds us of the moral responsibility to provide care and describes care as the “human glue” which binds together families and communities. Beyond this connection, he contends that individual caregivers can discover purpose, revelation, and gratification in tending to others. Much more than a sad story about suffering, loss, and an inevitably downhill disease, Kleinman’s graceful narrative provides the sort of tonic that society sorely needs.” —Booklist (starred review) “The Soul of Care will leave you shakenbut instructed, with an ethical imperativeand hopeful lessons regarding howbest to cultivate one’s humanity overthe course of a lifetime.” —Paul Farmer, MD “An astute, affecting memoir, candid and prescriptive in equal measure.” —Stacy Schiff, Pulitzer Prize-winning author “What was at stake for Arthur in his caring for Joan was nothing short of his humanity. Read this book and prepare to be both humbled and inspired.” —Jim Yong Kim, Former President of the World Bank

鼻塞、腹痛、关节疼痛，这些对身体异常和不适反应的切身感受，是我们无法回避的生命体验。 疾痛的主要问题，在于它给日常生活造成了大量的困难。腰酸背痛使我们分神，影响工作效率；头痛会让我们无法集中注意力，成绩下降；而有些疾病引发的性无能，甚至会导致婚姻破裂。 对一位单身母亲而言，高血压不仅意味着要少吃盐，还跟女儿的失学和早孕有关；而作为一位弱势群体的成员，社会的歧视、不公以及孤立，或许才是其身体持续疼痛的根源。长期紧张的父子关系，导致病患的双腿突然麻痹瘫痪；而换一个压力不那么大的工作环境，也会使一度恶化的哮喘慢慢痊愈。 然而，在大多数医生眼中，疾病才是问题所在。现代医疗系统，将我们鲜活的疾痛经验，解释为一种生物结构或是生理功能的变异，仅仅与身体有关。 对此，哈佛精神病医师与人类学家克莱曼博士，从其20年来的临床治疗和数百个真实病案中发现，疾痛不仅属于身体，而且连接着自我与社会。讲述这些疾痛故事，不但对于病患、家属和医护人员有着极大的使用价值，而且，对于认识医患关系和人性化的医疗体系改革，意义深远。

Bringing together the experience, perspective and expertise of Paul Farmer, Jim Yong Kim, and Arthur Kleinman, "Reimagining Global Health" provides an original, compelling introduction to the field of global health. Drawn from a Harvard course developed by their student Matthew Basilico, this work provides an accessible and engaging framework for the study of global health. Insisting on an approach that is historically deep and geographically broad, the authors underline the importance of a transdisciplinary approach, and offer a highly readable distillation of several historical and ethnographic perspectives of contemporary global health problems. The case studies presented throughout "Reimagining Global Health" bring together ethnographic, theoretical, and historical perspectives into a wholly new and exciting investigation of global health. The interdisciplinary approach outlined in this text should prove useful not only in schools of public health, nursing, and medicine, but also in undergraduate and graduate classes in anthropology, sociology, political economy, and history, among others.

In this moving and thought-provoking volume, Arthur Kleinman tells the unsettling stories of a handful of men and women, some of whom have lived through some of the most fundamental transitions of the turbulent twentieth century. Here we meet an American veteran of World War II, tortured by the memory of the atrocities he committed while a soldier in the Pacific. A French-American woman aiding refugees in sub-Saharan Africa, facing the utter chaos of a society where life has become meaningless. A Chinese doctor trying to stay alive during Mao's cultural revolution, discovering that the only values that matter are those that get you beyond the next threat. These individuals found themselves caught in circumstances where those things that matter most to them--their desires, status, relationships, resources, political and religious commitments, life itself--have been challenged by the society around them. Each is caught up in existential moral experiences that define what it means to be human, with an intensity that makes their life narratives arresting. These stories reveal just how malleable moral life is, and just how central danger is to our worlds and our livelihood. Indeed, Kleinman offers in this book a groundbreaking approach to ethics, examining "who we are" through some of the most disturbing issues of our time--war, globalization, poverty, social injustice--all in the context of actual lived moral life.

A psychiatrist at Harvard Medical School, Kleinman vitalizes his book with quotations from patients and members of the healing professions. This is a scholarly study but accessible to a lay audience. Writing of "suffering, healing and the human condition," the author observes the dichotomy between technological advances in medicine and the actual treatment of the ill, handicapped and dying. Profoundly moving reports illuminate the deprived lives of social outcasts, shunned and stigmatized, whose needs are not met by the medical community. There are also instructive descriptions of how an empathetic doctor can help "humans" (not cases) to regain health or, in extremis, die a "good death." Kleinman argues persuasively the need to reform today's medical-care system to more fully serve humanity.

一位越战英雄，在离开战场三十年后，家庭圆满、事业有成，却为何自责悔恨、郁郁而终？ 一位在非洲从事人道救援的年轻女性，在经历战乱、腐败、贫穷和疾病的威胁后，为何仍能鼓足勇气，继续艰难的奉献工作？ 一位在文革时期被好友出卖、受尽磨难的医生，当有机会复仇时，为何会选择将手中的刀剑轻轻放下？ 美国知名人类学家和精神病医师阿瑟•克莱曼，费时数年对这些“苦难经验”细致观察和体验，并以深刻的洞察力揭示了，勇敢面对生活中的危机和无常，并超越地方性价值观所带来的的限制，才是真正重要的事。

Deep China investigates the emotional and moral lives of the Chinese people as they adjust to the challenges of modernity. Sharing a medical anthropology and cultural psychiatry perspective, Arthur Kleinman, Yunxiang Yan, Jing Jun, Sing Lee, Everett Zhang, Pan Tianshu, Wu Fei, and Guo Jinhua delve into intimate and sometimes hidden areas of personal life and social practice to observe and narrate the drama of Chinese individualization. The essays explore the remaking of the moral person during China’s profound social and economic transformation, unraveling the shifting practices and struggles of contemporary life.