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stroke
New international standard creates unified health data across Europe https://www.byteseu.com/2385974/ #AirPollution #Cancer #Chronic #diabetes #Disability #Europe #Eye #Heart #HeartDisease #InfectiousDiseases #LungCancer #Pollution #PublicHealth #Smoking #stroke #Technology
YOU’RE LOOKING
AT THE WRONG PARTS 💎
I sometimes wonder what people imagine is going on inside the life of someone with a visible disability.
I walk very strangely. My left arm doesn’t work at all. My hand is contracted into a claw. I do everything one-handed, and that clearly wasn’t covered in this model’s original operating instructions.
From the outside, I suspect it can look like a life dominated by disability.
“Poor bugger.” “What a tragedy.” “Everything must be so difficult?”
Meanwhile, inside my actual life, I’m usually wondering whether the coffee is ready, what ridiculous thing I can write on Mastodon, whether the dogs have been fed, or why everyone on the internet has suddenly gone mad again.
The disability is there, obviously. I cannot drive, and there are many things I cannot do unaided. Other things just take longer, because much of the world appears to have been designed by someone who assumed every human comes with two fully operational hands.
And most people are remarkably unhelpful.
That sounds like a complaint, but it has an unexpected benefit. If you’re disabled, you become bloody good at finding another way. You have to.
Eventually, you stop wondering how something is supposed to be done and work out how you can do it.
That doesn’t make accessibility unnecessary. Quite the opposite. But disabled people often become extremely skilled at adapting because the world gives us plenty of practice.
Disability is not the central event of my consciousness.
I don’t wake up thinking, “Good morning. I am disabled.”
I wake up thinking, “Coffee.”
Most of the time, I’m not experiencing myself as a tragic medical story. I’m just living.
I’ve had decades to become extremely competent at being this particular slightly damaged model of human being. Sometimes other people seem considerably more concerned about my disability than I am.
It’s sweet.
But unnecessary.
The odd thing about a visible disability is that people often see what doesn’t work before they notice the enormous amount that does.
And from inside here?
It’s mostly just Friday.
_____________________
@DigitalCoup
#Fediverse #OpenWeb #BigTech
@economics_that_works
#Economics #Housing #CostOfLiving
@meditation
#Meditation #Breathwork
#Disability #DisabledLife #Accessibility #Hemiplegia #Stroke #Life #coffee #human #medical #instructions #tragedy #Mastodon
SAM’S STORY TOOK ME BACK
TO MY OWN STROKE 💎
Watching Sam's video on YouTube today, I couldn't help noticing his weight.
https://youtu.be/l6UNS8zFdGE?si=BwlIxbTWYv--obu2
For an able-bodied person, he might simply look on the bigger side. But watching him struggle with movement, I found myself wondering how much additional work that weight must place on a disabled body already having enormous difficulty moving.
I say that with enormous understanding and sympathy, because I had a major stroke myself and have lived with left-sided hemiplegia for decades now. I know how much effort an impaired body can require simply to get through an ordinary day.
In my own case, losing a substantial amount of weight through daily fasting has changed my life.
Moving is vastly easier. My balance has improved to the point where I can now stand still comfortably. I no longer feel so top-heavy and unstable. Walking is easier both uphill and downhill. I live in Hobart, so walking around this city provides plenty of opportunity to test that.
I can dress myself again. For years, I needed my partner's help with much of my self-care and dressing. My body simply feels lighter and easier to carry around, and I can reach everything with my one usable hand.
Breathwork has been equally important for me. I practise it every day, and together with fasting, it has changed the way I experience both my disability and my body.
For me, breathwork has coincided with far less depression, clearer airways and a much more active mind. I write every day now, often using AI to help me turn my thoughts into words.
I'm not suggesting either fasting or breathwork is a treatment for what happened to Sam. His medical situation was vastly more complicated than mine.
I'm only speaking about what happened to me.
When I was Sam's age, being disabled and overweight didn't seem particularly important. Nobody in the medical world said much about my weight, so I didn't either.
By 50, carrying it was becoming challenging.
By 65, it was crushing.
That was when I began fasting.
Becoming physically lighter has given me an extraordinary amount of my independence back.
I'm still disabled. That hasn't magically disappeared.
But at 70 now, I'm lighter, fitter and more independent. I can walk 10,000 steps in a day, dress myself, and move through the world far more easily than I could several years ago.
For this disabled body, it has been life-changing.
@3goodthings
@DigitalCoup
@meditation
@economics_that_works
@startrek
#disability #stroke #hemiplegia #fasting #breathwork #recovery #mobility #independence #aging #health #livedexperience #Tasmania #Hobart #AI #accessibility #people #peace #person